Life is a blur these days. How about you? Working at home mostly. I go to the office a couple days a week. No school. Summer school cancelled. Nora is bummed about that. She’s doing teletherapy sessions in the morning. Sometimes that’s a nightmare, sometimes it’s not. Depends on the day, and it depends on if Nora feels like engaging.
Here is a glimpse of Nora’s sense of humor:
Speech therapist held up a card of a squirrel and asked Nora what it was. Nora kept saying “hedgehog” with a smirk on her face. Next card was a raccoon. Nora called it a “scarecrow” and couldn’t even stand herself, she thought she was so clever. She can name any animal, letter, shape, color whatever. She’s bored. She wants in person interaction. I don’t blame her.
If school opens in the fall, she will attend the local integrated preschool that was our original first choice. They had an opening. Nora hates change. But I need her close. Forty five minutes away and being on the bus for an hour and twenty minutes each way was too much. This will be better. Much better. I hope she makes friends. She connects with adults. Not children. I hope that changes one day.
She’s been wild the past few months. Speech is better. More clear. At times she even speaks
in context. She answers questions. She asks questions. She lets us know how she feels. She’s getting better with manners. Then she has days like today, where she doesn’t stop talking for a second. Repetitive scripting. Over and over. It’s like she’s the only person in the room. In the world. Talking, answering herself. Very active. Tantrums. Hitting. Ignores everyone around her. Seemingly crawling out of her skin. In the beginning of March I sent an email to the doctor that originally evaluated her and diagnosed her. In the email I expressed my need for support due to Nora’s clear sensory needs. Then the pandemic happened. So we cope. We learn from her current therapists. We try our best. We keep
her busy. Everything will go back to normal soon.
We just crawled into bed. Definitely past Nora’s bedtime. She was talking to herself, and jumping. Then all of a sudden she said “Mom want to snuggle?” She crawled over to me, and put my hand on her head so I would stroke her hair. She was asleep within three minutes. Sometimes the scripting stops, and her busy brilliant mind takes a rest...and she lets me enter her world. Goodnight.
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