Yesterday Nora woke up around 5am. By "woke up" I mean she could barely stand, speak or keep her eyes open. She was responsive, but difficult to keep awake. Mind you- this child needs MINIMAL sleep. Rarely naps. It happened before. Seven months ago. Doctor referred us to upstate for an EEG. Nora was too combative. It was let go. Staring spells continued. Then yesterday, it all happened again. I called the doctor, they said bring her right to upstate. We rushed to my mother's where we dropped her off 30 minutes prior, and she was fine. Just very, very tired.
10am-5pm we sat in the ER, sharing a room with this monster of a six year old who beat the shit out of her mother all day and screamed. Doctor after doctor, same questions asked. No answers. Nora slept all day just about. Waking up for a drink or snack. We got admitted around 5pm and she got hooked up to the EEG machine around 9:30.
Test was normal. My typically wild, loud, jumping, flapping, singing child was a rag doll for an entire fucking day. Woke up the next day ready to rock. Back to baseline. Weird. Scary.
Neurologist said kids with disabilities go through phases. Their bodies and minds are so different than typical kids. Nora had a two week bender of high intense sensory overload. Crawling out of her skin. Nearly impossible to soothe. Yesterday's episode was her crashing. Her little body reacted by shutting down.
Neurologist agreed it was beyond abnormal. However with autism..."things can be tricky." He ruled out seizure activity and declared it a cycle. Gave us his card and on our merry way we went.
Another autism perk.
This too shall pass.
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